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UPDATED: Familial Dysautonomia and Coronavirus (COVID-19)

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The Dysautonomia Center would like to provide the FD community with an update regarding the current outbreak of […]

dysautonomialab February 28, 2020 familial dysautonomia, Pain Insensitivity, Uncategorized

Beyond sleep: The benefits of BiPAP and CPAP

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The urge to breathe comes from a physiological drive. Sensors inside and outside the brain are continuously monitoring […]

dysautonomialab October 11, 2019 familial dysautonomia, palma, research paper, Studies, Uncategorized

What I Learned From My Time at College

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Guest writer Gabi Jassie describes her life at college and how she overcame the challenges of having familial […]

Neuroscience Mum May 6, 2019 familial dysautonomia, Pain Insensitivity, Uncategorized

Familial Dysautonomia Research Update

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Our Natural History Study is currently open and recruiting patients with FD. Some patients have contacted us with […]

dysautonomialab April 25, 2019 familial dysautonomia, horacio kaufmann, Lab News, natural history, Studies, Uncategorized

Speeding up progress in FD with the natural history study

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New treatments are coming for patients living with FD. Find out why we need a natural history study […]

dysautonomialab April 15, 2019 Dr. Lucy Kaufmann, familial dysautonomia, horacio kaufmann, Lab News, natural history, Pain Insensitivity, palma, Studies, team, Uncategorized

Highlights from the 2017 MSA Patient and Family Conference

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Members of the Autonomic Disorders Consortium and the MSA Coalition partnered together to host the Annual MSA Patient and […]

dysautonomialab October 17, 2017 Dr. Lucy Kaufmann, horacio kaufmann, Lab News, multiple system atrophy, orthostatic hypotension, Parkinson disease, Uncategorized

Sam’s story: Working with the Center on the path to healthier lungs

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The Dysautonomia Center blog is happy to welcome guest writer Ms. Samantha Myers, who has familial dysautonomia, and […]

dysautonomialab April 3, 2017 familial dysautonomia, FD Day 2016, Uncategorized

New study opens for patients with familial dysautonomia

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Tackling rare diseases requires a well-planned strategy. The Center is kick-starting a new clinical project as part of […]

dysautonomialab March 11, 2017 Dr. Lucy Kaufmann, dr. mendoza, familial dysautonomia, horacio kaufmann, Lab News, palma, Studies, team, Uncategorized

Preventing injuries and burns in patients with decreased sensation to pain and temperature

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Accidents Accidents are of concern to parents of any child. The situation is especially complicated by the fact […]

dysautonomialab December 2, 2016 familial dysautonomia, Pain Insensitivity, Uncategorized

MSA NJ organizing a fund-raiser picnic for families in the tristate area

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Dear Friends, Multiple System Atrophy New Jersey (MSA NJ) is a non-profit organization, which provides support for patients […]

dysautonomialab September 1, 2016 Uncategorized

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