Low blood pressure in the upright position (orthostatic hypotension, OH) is common among patients with multiple system atrophy […]
rare disease
Autonomic failure is a condition that develops when the nerves that control the heart and circulation become damaged. […]
For the last 35-years, the first Sunday in June marks the day when families with familial dysautonomia gather […]
The recent coronavirus pandemic has changed the way we interact, but for patients with familial dysautonomia, this may […]
One of the challenges in rare diseases is creating a path for new therapies to be tested in […]
Guest writer Gabi Jassie describes her life at college and how she overcame the challenges of having familial […]
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