Dr. Joel Gutierrez is an expert in neurophysiology and dedicated his career to understanding problems in nerve conduction. […]
rare disease research
New treatments are coming for patients living with FD. Find out why we need a natural history study […]
Scientists have long known that one of the greatest problems faced by patients with familial dysautonomia is the […]
New York City, 2018 The 6th International MSA Congress (https://msa-congress-nyc.com), held recently in New York City, marked a […]
We spend around one-third of our lives sleeping. While we sleep, our brain enters different phases. We spend […]
Familial dysautonomia is rarer than most rare diseases, but this little known genetic disorder has become a gateway […]
At FD Day 2016, patients and family members came together for a 1-day intensive conference in New York […]
You either heard about FD Day or came to FD Day. Every year we tell you what is […]
Only you know how what it feels like to grow up with FD, and this is a chance […]
At the 2016 International Congress on MSA, over 130 experts in the field came together for a 2-day […]
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