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FD

The Medication Conundrum

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The Dysautonomia Center welcomes guest writer Alyson Brenner who shares her story on the journey to reduce sedative medications for her […]

dysautonomialab March 14, 2017 familial dysautonomia, Uncategorized

New study opens for patients with familial dysautonomia

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Tackling rare diseases requires a well-planned strategy. The Center is kick-starting a new clinical project as part of […]

dysautonomialab March 11, 2017 Dr. Lucy Kaufmann, dr. mendoza, familial dysautonomia, horacio kaufmann, Lab News, palma, Studies, team, Uncategorized

Breakthrough for the acute treatment of crisis in patients with FD

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Life is very unpredictable at times, but imagine how it must feel like to have no control over […]

dysautonomialab November 11, 2016 familial dysautonomia, horacio kaufmann, Lab News, research paper, research papers, Studies, team

New findings show remarkable inborn adaptability of the brain to protect itself against low blood pressure

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The human brain weighs less than 2% of our total body weight, yet consumes 20% of the body’s […]

dysautonomialab October 5, 2016 Dr. Lucy Kaufmann, familial dysautonomia, Lab News, research paper, research papers, Studies, Uncategorized

New article marks research progress in FD

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Familial dysautonomia is rarer than most rare diseases, but this little known genetic disorder has become a gateway […]

dysautonomialab August 22, 2016 Uncategorized

FD Day 2016: Everything you need to know

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At FD Day 2016, patients and family members came together for a 1-day intensive conference in New York […]

dysautonomialab June 20, 2016 Dr. Lucy Kaufmann, dr. mendoza, familial dysautonomia, FD Day 2016, horacio kaufmann, Lab News, palma, Studies, team, Uncategorized

RESULTS: The World Through my Eyes Photography Competition for People with FD

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  History The photography competition began in 2009 when we set the challenge for people with familial dysautonomia […]

dysautonomialab June 8, 2016 familial dysautonomia, FD Day 2016, Uncategorized

What’s new for FD Day 2016?

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You either heard about FD Day or came to FD Day. Every year we tell you what is […]

dysautonomialab May 5, 2016 familial dysautonomia, FD Day 2016, team, Uncategorized

THE WORLD THROUGH MY EYES: A photo competition for people with FD

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Only you know how what it feels like to grow up with FD, and this is a chance […]

dysautonomialab May 4, 2016 familial dysautonomia, FD Day 2016, team, Uncategorized

Scoliosis in FD: New developments and a new star surgeon at NYU

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  When NYU recruited Dr. Shay Bess, they wanted him to tackle the most complex spine cases. The […]

dysautonomialab February 20, 2016 familial dysautonomia, Lab News, team

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