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familial dysautonomia

Mapping the size of the sensory nerves in familial dysautonomia

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The 12 cranial nerves carry bundles of fibers that enter and exit the brainstem at various levels. The […]

dysautonomialab March 12, 2020 familial dysautonomia, horacio kaufmann, Lab News, Pain Insensitivity, palma, research paper, research papers, Studies, swallowing, Uncategorized

The vagus nerve and the key to calm: A tale of two autonomic disorders

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The vagus nerve is the longest cranial nerve in the body and derives its name from the Latin […]

dysautonomialab March 11, 2020 Broken heart syndrome, Dr. Lucy Kaufmann, familial dysautonomia, research papers, Uncategorized

Beyond sleep: The benefits of BiPAP and CPAP

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The urge to breathe comes from a physiological drive. Sensors inside and outside the brain are continuously monitoring […]

dysautonomialab October 11, 2019 familial dysautonomia, palma, research paper, Studies, Uncategorized

Speeding up progress in FD with the natural history study

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New treatments are coming for patients living with FD. Find out why we need a natural history study […]

dysautonomialab April 15, 2019 Dr. Lucy Kaufmann, familial dysautonomia, horacio kaufmann, Lab News, natural history, Pain Insensitivity, palma, Studies, team, Uncategorized

New expert respiratory guidelines for familial dysautonomia

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Scientists have long known that one of the greatest problems faced by patients with familial dysautonomia is the […]

dysautonomialab August 29, 2018 breathing, dysphagia, familial dysautonomia, horacio kaufmann, Lab News, Pain Insensitivity, palma, research paper, research papers, Studies, swallowing, team, Uncategorized

The ears, balance and the FD mutation

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New research from the Dysautonomia Center at NYU shows the first possible link between the FD genotype and […]

dysautonomialab January 24, 2018 Dr. Lucy Kaufmann, dr. mendoza, familial dysautonomia, horacio kaufmann, Pain Insensitivity, palma, research paper, research papers, Studies, team, Uncategorized

New study confirms the safety of asthma medications in the rare disease familial dysutonomia

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Each inspiration moves fresh air into the lungs and every expiration expels stale air out. Normally, we breathe […]

dysautonomialab December 15, 2017 Dr. Lucy Kaufmann, familial dysautonomia, Lab News, research paper, research papers, Studies, team, Uncategorized

A breakthrough in the race to save vision for patients with FD

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Our ability to see depends on dozens of tiny ganglion cells in our retina that encode our visual world. […]

dysautonomialab April 26, 2017 dr. mendoza, familial dysautonomia, Lab News, research paper, research papers, Studies, team, Uncategorized

New article marks research progress in FD

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Familial dysautonomia is rarer than most rare diseases, but this little known genetic disorder has become a gateway […]

dysautonomialab August 22, 2016 Uncategorized

FD Day 2016: Everything you need to know

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At FD Day 2016, patients and family members came together for a 1-day intensive conference in New York […]

dysautonomialab June 20, 2016 Dr. Lucy Kaufmann, dr. mendoza, familial dysautonomia, FD Day 2016, horacio kaufmann, Lab News, palma, Studies, team, Uncategorized

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