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Helpful articles to share with your doctors on FD

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Today, patients with FD live all over the world and many are cared for by brilliant doctors at […]

dysautonomialab June 22, 2020 dysphagia, familial dysautonomia, palma, Uncategorized

High blood pressure in autonomic failure may pose a risk to health

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Autonomic failure is a condition that develops when the nerves that control the heart and circulation become damaged. […]

dysautonomialab June 19, 2020 Lab News, multiple system atrophy, orthostatic hypotension, palma, research paper, research papers, Studies, team, Uncategorized

Information on the natural history dataset for patients with FD

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We need you. The closer we can follow you, the sooner we can understand your issues and the […]

dysautonomialab June 14, 2020 Uncategorized

The retina and a collaborative vision forward

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The loss of vision is one of the hardest things to witness in the clinic. Children with FD […]

dysautonomialab June 13, 2020 Uncategorized

The FD Foundation’s new Scientific Advisory Board forms at NYU

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The FD Scientific Advisory Board are tasked with evaluating the science of FD and crafting a path to […]

dysautonomialab June 12, 2020 Uncategorized

FD Day 2020 goes international

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For the last 35-years, the first Sunday in June marks the day when families with familial dysautonomia gather […]

dysautonomialab June 11, 2020 familial dysautonomia, Uncategorized

The gut, the nerves, and the microbiome

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The human body has around 100 trillion microorganisms. The microbes living within our gut usually live in harmony […]

dysautonomialab June 10, 2020 Dr. Lucy Kaufmann, familial dysautonomia, Lab News, Uncategorized

Celebrating courage with the 2020 Dystinguished Awards

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Every year, the Center partners with the Familial Dysautonomia Foundation to host an annual conference for patients, caregivers, […]

dysautonomialab June 9, 2020 Dr. Lucy Kaufmann, familial dysautonomia, Pain Insensitivity, Uncategorized

FD COVID-19 Update, Tips for Lung Health and Stress Management

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Re: Familial Dysautonomia and Coronavirus Dear Families, It has now been 2 months since The World Health Organization […]

kaiadalamo May 20, 2020 Uncategorized

The Eye, Familial Dysautonomia and COVD-19

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Several reports have emerged about conjunctivitis (pink eye) being a sign of COVID-19. We interviewed eye expert, Dr. […]

dysautonomialab April 24, 2020 dr. mendoza, Uncategorized

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