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Category Archive: Uncategorized

The retina and a collaborative vision forward

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The loss of vision is one of the hardest things to witness in the clinic. Children with FD […]

dysautonomialab June 13, 2020 Uncategorized

The FD Foundation’s new Scientific Advisory Board forms at NYU

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The FD Scientific Advisory Board are tasked with evaluating the science of FD and crafting a path to […]

dysautonomialab June 12, 2020 Uncategorized

FD Day 2020 goes international

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For the last 35-years, the first Sunday in June marks the day when families with familial dysautonomia gather […]

dysautonomialab June 11, 2020 familial dysautonomia, Uncategorized

The gut, the nerves, and the microbiome

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The human body has around 100 trillion microorganisms. The microbes living within our gut usually live in harmony […]

dysautonomialab June 10, 2020 Dr. Lucy Kaufmann, familial dysautonomia, Lab News, Uncategorized

Celebrating courage with the 2020 Dystinguished Awards

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Every year, the Center partners with the Familial Dysautonomia Foundation to host an annual conference for patients, caregivers, […]

dysautonomialab June 9, 2020 Dr. Lucy Kaufmann, familial dysautonomia, Pain Insensitivity, Uncategorized

FD COVID-19 Update, Tips for Lung Health and Stress Management

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Re: Familial Dysautonomia and Coronavirus Dear Families, It has now been 2 months since The World Health Organization […]

kaiadalamo May 20, 2020 Uncategorized

The Eye, Familial Dysautonomia and COVD-19

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Several reports have emerged about conjunctivitis (pink eye) being a sign of COVID-19. We interviewed eye expert, Dr. […]

dysautonomialab April 24, 2020 dr. mendoza, Uncategorized

Virtual FD Day 2020: An international connection

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The recent coronavirus pandemic has changed the way we interact, but for patients with familial dysautonomia, this may […]

dysautonomialab April 10, 2020 Dr. Lucy Kaufmann, familial dysautonomia, FD Day 2016, natural history, Pain Insensitivity, Uncategorized

Top tips for measuring your blood pressure at home for telemedicine visits

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The current coronavirus pandemic has made it impossible for many patients with chronic neurological illnesses to leave their […]

dysautonomialab April 8, 2020 multiple system atrophy, orthostatic hypotension, Uncategorized

How new research on depression in MSA is helping clinical development

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According to new research over 2 in 3 patients with multiple system atrophy have depression and this influences […]

dysautonomialab April 8, 2020 multiple system atrophy, orthostatic hypotension, research papers, Uncategorized

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