Talking it out is good for you. Quite often, we find comfort in turning to others living with […]
Category Archive: Uncategorized
Guest writer Gabi Jassie describes her life at college and how she overcame the challenges of having familial […]
The World Through My Eyes photography competition began in 2009, when we set the challenge for people with […]
Our Natural History Study is currently open and recruiting patients with FD. Some patients have contacted us with […]
Our weight is influenced by a number of factors, including our diet, our exercise, and our genetic code. […]
Dr. Joel Gutierrez is an expert in neurophysiology and dedicated his career to understanding problems in nerve conduction. […]
New treatments are coming for patients living with FD. Find out why we need a natural history study […]
Currently, there are no treatments that can slow or stop the progression of neuron death in multiple system […]
Dr. Alberto Palma was recognized by the American Autonomic Society as the first recipient of the Felicia Axelrod […]
Scientists have long known that one of the greatest problems faced by patients with familial dysautonomia is the […]
