Our Natural History Study is currently open and recruiting patients with FD. Some patients have contacted us with […]
Category Archive: Studies
New treatments are coming for patients living with FD. Find out why we need a natural history study […]
Currently, there are no treatments that can slow or stop the progression of neuron death in multiple system […]
Scientists have long known that one of the greatest problems faced by patients with familial dysautonomia is the […]
New research from the Dysautonomia Center at NYU shows the first possible link between the FD genotype and […]
Each inspiration moves fresh air into the lungs and every expiration expels stale air out. Normally, we breathe […]
We spend around one-third of our lives sleeping. While we sleep, our brain enters different phases. We spend […]
Our ability to see depends on dozens of tiny ganglion cells in our retina that encode our visual world. […]
In 1949, when pediatricians Conrad Riley and Richard Day first encountered 5 children unable to cry with tears, […]
Orthostatic hypotension (OH) can cause dizziness, lightheadedness, and even angina on standing. It occurs when the autonomic reflexes […]
