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Author: kaiadalamo

Congratulations Rebecca!

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We had the pleasure to interview Rebecca Newman, whom we expect to be graduating with honors from Pace […]

kaiadalamo November 4, 2020 Uncategorized

Tips for Helping Your Loved-One Wear PAP Therapy

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We know getting used to wearing a mask during sleep can be difficult. But it remains vital to […]

kaiadalamo September 9, 2020 Uncategorized

Finding the Zzz’s in FD

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A Guide to FD Families Struggling with Sleep Children and adults with familial dysautonomia (FD) often have difficulty […]

kaiadalamo August 11, 2020 Uncategorized

In Remembrance of Jamie

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Jamie Goldblat 6/4/1990 – 3/27/2020 …So long as we live, they too shall live, for they are now […]

kaiadalamo July 22, 2020 Uncategorized

FD COVID-19 Update, Tips for Lung Health and Stress Management

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Re: Familial Dysautonomia and Coronavirus Dear Families, It has now been 2 months since The World Health Organization […]

kaiadalamo May 20, 2020 Uncategorized

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