Talking it out is good for you. Quite often, we find comfort in turning to others living with a particularly problem and sharing our stories. Finding a sympathetic ear and a willingness to offer advice can have a whole host of benefits. Finding someone that “gets” what you’re going through can feel like a weight off the shoulders.
For patients, families, caregivers, and loved ones living with multiple system atrophy (MSA), there is now a New York City MSA Support Group, which plan to meet quarterly. The meetings will be held at the NYU Medical Center, which is fully wheelchair accessible, and has available parking (for which you have to pay).
This is an opportunity to build a New York City community for people living with MSA so that together they can grapple with questions, ask for advice, air their worries, and seek support.
“The MSA New Jersey Group has become strong voice in advocating for MSA and continues to be a great resource for families” explained Dr. Lucy Norcliffe-Kaufmann, Associate Director of the Dysautonomia Center. “We are now hopeful that a Manhattan-based meeting can provide a similar support network for people living with MSA in New York.”
Details of the Support Group Meeting are below. Please share to help us spread the word. For more information about the meeting please email: contact@msanj.org or call MSA-NJ at 732-903-8517
MSA New York City Support Group
When (next meeting): May 18, 2019 (Quarterly Meetings Planned)
11:00 AM – 1:00 PM
Where: NYU Langone Health
530 First Avenue
New York City, NY
Between 30th and 33rd Streets (Use Main entrance on 1st Avenue)
Meeting Room: MSB 194 (Yellow Pathway)
Facilitator: Kara Byron
Who: Patients, caregivers, families and advocates whose lives have been touched by MSA or other related neurological disorders (PSP, CBD, etc.). This group offers a setting where we can all feel comfortable to:
- Learn from each other’s experience with managing symptoms and different disease treatments
- Talk openly to others who are struggling with some of the same questions and challenges caused by MSA
- Share our struggles and successes openly
- Share local resources
- Help each other find the tools and strength to fight this disease
- Benefit from professional guest presentations
PLEASE RSVP if you plan to attend. Thank you.
Email: contact@msanj.org
OR Call MSA NJ at 732-903-8517
dysautonomiacenter.com 