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Research speeds ahead: 1 year update from the sirolimus MSA trial

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Almost 1 year ago, the first patient with multiple system atrophy (MSA) was enrolled in the clinical trial […]

dysautonomialab October 25, 2019 multiple system atrophy, palma, Parkinson disease, Studies, Uncategorized

Beyond sleep: The benefits of BiPAP and CPAP

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The urge to breathe comes from a physiological drive. Sensors inside and outside the brain are continuously monitoring […]

dysautonomialab October 11, 2019 familial dysautonomia, palma, research paper, Studies, Uncategorized

MSA NYC Support Group Opens

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Talking it out is good for you. Quite often, we find comfort in turning to others living with […]

dysautonomialab May 7, 2019 Uncategorized

What I Learned From My Time at College

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Guest writer Gabi Jassie describes her life at college and how she overcame the challenges of having familial […]

Neuroscience Mum May 6, 2019 familial dysautonomia, Pain Insensitivity, Uncategorized

10th Anniversary of the FD Photo competition

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The World Through My Eyes photography competition began in 2009, when we set the challenge for people with […]

dysautonomialab April 25, 2019 Uncategorized

Familial Dysautonomia Research Update

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Our Natural History Study is currently open and recruiting patients with FD. Some patients have contacted us with […]

dysautonomialab April 25, 2019 familial dysautonomia, horacio kaufmann, Lab News, natural history, Studies, Uncategorized

New study sheds light on why patients with FD struggle to gain weight

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Our weight is influenced by a number of factors, including our diet, our exercise, and our genetic code. […]

dysautonomialab April 18, 2019 breathing, Dr. Lucy Kaufmann, familial dysautonomia, horacio kaufmann, Lab News, Pain Insensitivity, research paper, research papers, swallowing, Uncategorized

Long term collaboration continues thanks to the support of the Dysautonomia Foundation

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Dr. Joel Gutierrez is an expert in neurophysiology and dedicated his career to understanding problems in nerve conduction. […]

dysautonomialab April 17, 2019 dysphagia, familial dysautonomia, horacio kaufmann, Lab News, Uncategorized

Speeding up progress in FD with the natural history study

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New treatments are coming for patients living with FD. Find out why we need a natural history study […]

dysautonomialab April 15, 2019 Dr. Lucy Kaufmann, familial dysautonomia, horacio kaufmann, Lab News, natural history, Pain Insensitivity, palma, Studies, team, Uncategorized

New study testing a potential drug to slow the progression of MSA opens at NYU

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Currently, there are no treatments that can slow or stop the progression of neuron death in multiple system […]

dysautonomialab December 17, 2018 horacio kaufmann, multiple system atrophy, palma, Studies, Uncategorized

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